Paint, Interrupted — a DIY Surrender
I’m getting my house painted this week. I know I’ve written about painting it myself, describing how That Hoarders Smell inside the house was so bad that it engulfed me even while I was painting outside. So yeah, I painted the house already.
But I never finished.
I painted the front under the porch. Then I stood on the porch roof to paint the second floor. And, along with my nephew, I perched on scaffolding temporarily left by another contractor as I prepped, primed and painted the back of the house.
That left the sides, where the paint was peeling so badly that barely brushing by it caused a snow flurry of dirty paint flakes, some big, some small, some lead-based, some not.
So although usually one preps, primes and paints from the top down, I started from the bottom up, reasoning that since we were about to move into this house I didn’t want the children to be exposed to this peeling paint at eye level. The upper floors weren’t peeling or flaking as badly as the lower level and at least no one would be touching it. So, for safety’s sake I tackled the first floor. Well, safety and the fact that I could reach the lower level and paint it myself without scaffolding or big ladders that I didn’t own.
The top side sections, however, have not been prepped, primed, or painted.
It’s tacky. It’s been this way for over two years.
I had every intention of painting the rest of the house myself. A contractor friend even lent me some scaffolding and we put it up on one side of the house. Then, well, stuff happened, and I changed and eventually went off my meds, which gave me vertigo, poor equilibrium, extreme dizziness, and severe sensitivity to light. I couldn’t even think about doing it then. My friend eventually took his scaffolding back, unused.
Since then I have struggled with my half-painted house. I struggled to find the energy to paint my house, struggled to find the motivation and money, struggled to conquer my newly developed fear of heights, that I will fall and lay broken and bleeding in my yard —and no one will know.
And, I lost my Mojo. I’d done so much work on this little Hoarders house. I’d tried to make it nice. I did make it nice. But recently I’ve been feeling that no matter what I do to this house, which sits on a busy street and backs up onto the perimeter of an poor neighborhood, it will always be compared to the much larger marital home situated in a park-like setting. I don’t miss that home at all, and selling that home was one of the best decisions I’ve ever made — that decision may be a subject of another post — but I don’t love where we are now, I tried . . .
- I installed a stone patio and fire-pit for us to enjoy — that no one uses.
- I partially finished the basement so that we’d have a place for the drums and could jam — but no one does.
- I made a music room for lessons for students that are fewer and fewer in number each year.
- I planted shrubs to give us some privacy — that died.
- I bought a shed to house bicycles — that nobody rides.
But. . . I never finished painting the house. Perhaps part of me became comfortable with my half painted house. Maybe it was some sort of admission of defeat. The move been an adjustment, a difficult adjustment. I’m not going pretend otherwise — anymore.
Don’t get me wrong. I’m proud of my accomplishments with respect to this home and my family. I’m happy that we have a roof over our heads and that the kids didn’t have to change schools — which was the reason why I bought the little hoarders home in the first place. And I know things could be a lot worse, and that things aren’t really that bad, or really bad at all.
Still, the unfinished paint job screams that there are still struggles in this home.
Anyone looking at it would ask,
“Cute house. But when is she going to finish painting it?”
Well, the answer is “Now.” I’m borrowing from Peter to pay Paul to pay some Painters that gave me a good deal because one of my “Friends Without Benefits” told them to.
I’m waving the white flag in surrender. I will not finish painting the house myself. But I will not leave it partially unpainted for another year as a shrine to my failure to renovate our way into happiness — or the land of denial. I’ve got to think of resale value and protect my investment. So, I’ve called in the professionals.
It is what it is. And it has to get done. At least it won’t look tacky anymore.
“Maybe it will lift my spirits,” I thought, as I’ve been feeling a bit blue lately.
And then, the universe threw me a bone.
The painters here are very nice guys. Just now one of them stopped me and said,
“I don’t want you to get a big head or anything, but I gotta tell you . . . you look just like Halle Berry. Hasn’t anyone ever told you that? Mike (the other painter) said it yesterday, too. I’m a movie buff, so I would know.”
I have to say, I’m starting to feel a lot better about hiring these guys to paint my house. A lot better.
Just Me With . . . a paint job in progress, in butter cream with hunter green trim, done expertly by — my new best friends.
Postscript: The painting is finished. The house looks great, it really does, and just in time for Winter.
Sadly, one of my kids informed me that her friends told her that they aren’t allowed to come to our neighborhood, for fear they might get mugged.
Getting Off The Meds
I had been on this particular anti-depressant for a year, had been on others before that (since my husband moved out). The medicine, coupled with therapy, helped me during a very, very bad time. With the medicine I was better than I had been during those darkest days. But was I still depressed? Absolutely. Because of my general poor health, diet and limited success on the meds, “they” (meaning my psychiatrist, but “they” sounds as impersonal as it felt then) switched me from one anti-depressant to another, then another. I had made strides, was functional to a certain extent, but still had what they called “major episodic depression” . . . and when I was bad, I was really bad. And with that last medicine I was on, I felt numb, less creative and I suffered from fatigue — falling asleep behind the wheel — kind of fatigue. Emotionally, it seemed as though I had reached a plateau but from time to time, I would just fall off.
I simply wasn’t snapping out of it.
Then, after a particularly rough descent into a depressive episode, they suggested that my condition be treated more aggressively. In addition to stepped up therapy, there were more meds prescribed — “add-ons” they called them — additional medicines to take on top of the daily anti-depressant I was already taking.
The first “add-on” affected my eyesight. I could barely read anything. Also, it made me manic, it wasn’t unusual for me to be doing landscaping at 2:00 am and I– could– not–stop. (My yard looked great, though, but I digress.)
When I complained of not being able to see, and of being so agitated and let’s face it, weird, they switched me to a different add-on. Additionally, as part of a larger plan, since my general health and diet had improved, I requested a change in my daily main anti-depressant and asked if I could go back to the one that didn’t make me fall asleep in odd places. They didn’t allow me to change at first, but since my fatigue had gotten worse– almost falling asleep at the kitchen sink — and I was eating better than before, they said I could change. (Reportedly, without adequate nutrition the other anti-depressant could cause seizures. Wonderful. But I had been eating better, and promised to continue doing so.)
So they instructed me, in writing, to:
- Cut the dosage of my current main anti-depressant in half,
- Discontinue taking the first add-on
- Begin new add-on medication, one I’d never taken before.
- Discontinue current main anti-depressant completely,
- Begin another anti-depressant, one I’d used before but had fewer side effects (meaning, I was awake)
In other words, my doc had told me to switch both my main anti-depressant and the add-on during a two-week period.
“Okay, whatever,” I thought. I just wanted to be able to see, be conscious, sit still and maybe get some creativity– some of the “me” back.
I followed the instructions.
But I had problems with the new “add-on.” That particular medication warned that if you get a rash from it, especially in your eyes, you could die. My eyes started itching, I had that kind of rash. Since they didn’t know which meds were causing it, and it was potentially fatal, I was told to stop taking everything, cold turkey. So, I did.
No one told me there could be side effects, no one told me there was withdrawal.
First I became so, so dizzy. I would walk into door jams, stumble around in my little house. I had been in the midst of home improvement projects that required me to be up on a ladder. I couldn’t even think of it. My equilibrium was off. Way off.
Then came the nausea and diarrhea.
Because of my history, Confessions of a Skinny Mom, I am no stranger to stomach ailments. But this was different. Sudden flu or food poisoning-like symptoms hit me, hard.
“Damn, am I sick? ”
I kept having to go to the bathroom. “Whoa,” I thought. “This isn’t normal. Had I eaten something bad ? ” I wondered.
Without going into the gory details, suffice it to say that I stopped keeping track of my bathroom visits after eight trips to the toilet in an hour. I was too sensitive to sights and smells to camp out in there. Ewwww! So back and forth I went. (No pun intended.)
Next came the brain zaps. It’s so hard to describe. It’s like getting hit in the head with a heavy blunt object, but without the external pain. Sudden flashes of light out of nowhere, caused by nothing, but strong enough to make me stop talking, lose my train of thought, blink, cringe, shudder, look around
. . . at nothing.
Then light became my curse. It hurt to open my eyes, it didn’t matter whether it was artificial or sun light — any light hurt. I started to wear sunglasses inside, at night. Sound bothered me as well, but not as much as light. Unless — it was the phone. I couldn’t hold a phone to my ear; I thought my ears would bleed. I had to talk on speaker or I couldn’t talk at all.
I lived like a vampire, a vampire with the runs. (TMI? I know, it was too much for me, too.)
I shouldn’t have been driving.
Still, the kids had to get places and I didn’t know what was wrong with me. I tried to work through it. It’s a mom thing. I was trying to play it off. Wrong. So wrong. Clearly I hadn’t learned my lesson from my previous illnesses I ignored. “Almost F*cked to Death.” And did I mention it was Halloween and I have five kids? I did the best I could, and I did more than I should have, but it wasn’t much fun that year. Not at all. I told the kids I was sick and they’d have to be patient with me. I usually enjoy Halloween, but that year? — well, it was just too damn scary.
On the road it felt as though cars were coming right at me, like some sort of horror movie and awful amusement park ride combined . . . on drugs. I missed turns in my own neighborhood. I yelled at the kids to be quiet because I had to concentrate on what I was doing. It took so much focused energy to go forward. I white knuckled the steering wheel, for dear life. It was counter-intuitive, really. I mean, I know not to drive while under the influence. But my impaired driving was because I wasn’t taking anything. It didn’t make sense. Bottom line, though, my judgment, reflexes, everything was impaired. I should not have been on the road.
And I was so weak. So weak. I recall going to the store and needing a cart — to hold myself up. I couldn’t walk without swooning, and I had to close my eyes from time to time, even with sunglasses on. Like having a bad flu, I hurt all over.
Mentally, it took its toll as well, mainly because I didn’t know what was happening to me. The brain zaps and the light sensitivity, the nausea and the lack of depth perception and compromised equilibrium — it all started to affect my judgment. I wouldn’t say I was suicidal, exactly, but I wasn’t thinking right. I was agitated, confused. I thought I was going crazy. It wasn’t pretty. When I thought of what I went through alone, and what could have happened, I still shudder. I wasn’t thinking clearly at all. I didn’t have another adult to talk to about it. Paranoia had set in.
I was alone on that worst first night, fending off invisible blows to my head in a darkened room that seemed to keep spinning around. But a friend happened to call me, an acquaintance, really. I answered (on speaker) out of desperation, I was close to quiet hysteria. She casually asked how I was doing. Now I had diarrhea again — of the mouth. I quickly told her I wasn’t doing too well, confessed I had been on meds, developed side effects and stopped taking them pursuant to doctor’s orders but was freaking out! And I described to her how I felt. Poor thing, I know she wasn’t expecting so much information from me, but she listened, and was concerned. (I probably sounded like a maniac.) She talked me down from some of my agitation and convinced me to call the doctor. To this day I don’t remember who called me that night.
But the next day was Sunday, and Halloween, and did I mention I have five kids? Poor kids. I wasn’t my normal Halloween loving self. We got through it. By the time I got a message returned from my psychiatrist and told her how I was feeling, she said that I sounded sick and should see a doctor. Ya think? Wait. What? Isn’t SHE a doctor? Yes, yes, she is, but she suggested I see my regular primary care physician or go to the emergency room. I didn’t feel up to taking myself to the ER so I waited to see my regular doctor. He told me he thought my symptoms were from the withdrawal from the first anti-depressant, not the rash-making add-on. He said I could keep working through it and see what life is like off the meds.
Huh, I thought. So far, life off the meds hurt like hell and . . . IT WAS STARTING TO PISS ME OFF. Everything was starting to piss me off. Ahh yes, another lovely discontinuation effect of which I had not been warned.
Rages, they call them. Sudden fits of anger. Lovely. I should have been chained to a pipe in a dark basement with nothing but a pissy mattress.
When I felt well enough to do research, I found that I was not alone, that this medication is almost never stopped cold turkey because of the horrific “discontinuation effects.” Patients usually plan to ween over a period of months, not days, and still suffer. Some liken the symptoms to heroin withdrawal and even suggest that cold turkey discontinuation only be attempted while hospitalized. But it’s not about a craving for the medication, anti-depressants don’t really work like that, it’s about the physical withdrawal the body goes through when the medicine is taken away. Because the withdrawal symptoms can be so debilitating, patients often plan the withdrawal during a time when they can take off work and all other responsibilities. Silly me, attempting cold turkey withdrawal while caring for five kids — at Halloween. But I didn’t know.
Armed with this information, I talked to my psychiatrist again, this time in person, and explained all of my symptoms and what my other doctor had said. She advised that my only choice was to start taking a low dosage of the same anti-depressant again and ween slowly from that.
What? Start taking it again? What?
Hoping that I’d already suffered through the worst of it, I decided not to start taking the drug again. My shrink apologized for not telling me that there could be “discontinuation effects.” How could she not tell me? Yeah, I was pissed, sitting there in her office, with my sunglasses on, blinking after the brain zaps. I was pissed. And I looked like hell.
The zaps went on for months, as well as the light sensitivity, lethargy and dizziness. It was not unusual for me to wear sunglasses in the grocery store, at night, leaning on a cart. Pitiful. But don’t talk to me. I might not be nice. Shhhh.
Imagine having a hangover while on a spinning carnival ride while seated next to someone who annoyed the hell out of you and who kept clocking you in the head. Yeah . . . like that.
It’s been almost a year now. I’m still suffering from some long-term discontinuation effects. I have trouble putting a phone to my ear, I never go anywhere without sunglasses, and I’m often suddenly irritable — but less so now. I have other physical symptoms — but these may or may not be a result of dealing with depression without medication. I don’t know.
Regardless, I wish I would have known that there was a possibility that I would suffer so from simply stopping the medication. If I had, I would have thought twice about starting this particular drug in the first place. Had I known — what I learned too late, I absolutely would have planned my discontinuation of the medicine so very differently, or at the very least timed it differently.
And this I know: I will never take anything again without researching not only the possible side effects while taking the medication, but the possible effects of discontinuing it.
In the end, I am just very grateful that I didn’t accidentally or intentionally cause any harm to myself or others while going through the withdrawal.
It was a horrible experience.
Just Me With OUT . . . Cymbalta.
Depression hurts . . . Cymbalta can help. But if you stop taking it . . . beware. Bwa ha ha ha! www.CymbaltaWithdrawal.com
P.S. I am not against the use of anti-depressants, or add-ons, or whatever it takes. And I know that some people do not suffer any discontinuation effects. My medicines got me off the floor during a unspeakably painful time. So no judgment on people taking medicine for depression. I do believe, however, that discussion of the type, timing, dosage, length of treatment and effects of discontinuation of treatment should be initiated by the prescribing physician and thoroughly discussed. There was much I didn’t know, and wasn’t thinking clearly enough to ask or research on my own. I was uninformed, and that’s never good.